August designation will help families
By Staff
Staff Editorial
Franklin County Times
Senator Roger Bedford signed a senate resolution declaring August Spinal Muscular Atrophy Awareness month in Alabama Friday afternoon.
The Alabama Chapter of Families of Spinal Muscular Atrophy, and the family members of a local SMA patient, 18-month-old Aiden Bundy, backed the resolution.
In the resolution, the senate recognized that one in every 6,000 is born with SMA, and that 7.5 million Americans are carriers of the disease.
Bundy was diagnosed with Type 1 SMA at five months old and his health has deteriorated ever since.
FSMA and the Muscular Dystrophy Association bring awareness to the disease and raise money for SMA research.
The Senate's resolution will hopefully bring more attention to the illness and encourage others around the state to help families like the Bundys.
Often times such rare diseases go unnoticed until they hit home.
This one has hit home and now it's time to help.